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In which Amy updates about her cancer

Hello again. I have an update on the tumor... and the news is not particularly good. I have Adrenocortical Carcinoma in stage 4</a> meaning that it has spread to my lungs as well. Currently the survival rate is 25%-35% after five years, which I don't quite understand since the there are two adrenal glands and you only really need one. I will have a lot of questions for the doctor tomorrow. How exactly do 65% of people die within the five years when you have two Adrenal glands. I'll have to ask the doctor that question. I will survive this for now, I have no doubt about that. I am just worried about the mess I will be when it is all over, only to have a very high likelihood of it coming back. Anyway, thanks for all your thoughts and prayers. I know I am hoping for some really good luck and it means a lot to read your comments.

I have lost another 20 pounds in two weeks. That is not good by the way.

Comments

( 14 comments — Leave a comment )
ghostprayer
Aug. 1st, 2012 03:28 am (UTC)
I really wish I had something helpful to say other than I am keeping you in my thoughts and sincerely hoping for the best... I cannot imagine how you must be feeling, but if you ever need to talk about anything, please don't hesitate to send me an e-mail if you are feeling well enough/have the time. Please keep us updated if you can as well.

Try to stay as strong as you can and not be bogged down by one source's survival rates. Definitely ask your doctor every question you can think of and find out all of your options. I hope we can hear good news from you soon! <3
alexielnet
Aug. 5th, 2012 11:41 pm (UTC)
Thank you for everything. I'm really struggling right now but people have been incredibly supportive. It's so hard when your mind is lost.
amazonqueenkate
Aug. 1st, 2012 11:45 am (UTC)
Amy, I don't know what else to say other than that I am so sorry, and I am pulling for you. Please let me know if there is anything I can do to help you right now.

Have I told you the story of my Girl Scout Leader and the lying cancer statistics that lied? I know I told you about my mother. But if I have not told you that story, I certainly will, because it always gives me hope when I thinking about that heinous bastard we call cancer.
alexielnet
Aug. 5th, 2012 09:56 pm (UTC)
Thank you so much for all your comments during this terrible time, Any information you might have would be lovely. My head is in complete fog at the moment, so I might have trouble understanding it right now, but it's all great to have when I can think straight. Thanks again.
reikane
Aug. 2nd, 2012 01:00 am (UTC)
I'll keep praying for you, dear. I'll pray very hard. I-I feel so terrible that it's all I can do right now. I hope you seek the best, most immediate help you can get. Please stay strong, even if it seems so hard.
alexielnet
Aug. 5th, 2012 11:42 pm (UTC)
Thank you. Some days even typing is difficult. It's so strange.
swallowthelake
Aug. 2nd, 2012 03:14 am (UTC)
I'm at a loss for words. I hope that everything works out.
alexielnet
Aug. 5th, 2012 11:43 pm (UTC)
Thank you so much!
trenchkamen
Aug. 2nd, 2012 08:18 am (UTC)
I am so sorry. I've been away from LJ for a while, and this is one of the first posts from you I've read in a while. It sounds like you had quite a run-around with it.

I don't know what to say. I can't imagine how you must feel, so it would be insulting to say that I understand. But I am here if you need somebody to talk to. I have done cancer research, so I'm pretty well-versed in the molecular biology of it.
alexielnet
Aug. 5th, 2012 11:50 pm (UTC)
I know this is the pain and the panic talking but there are days I envy that man who succeeded at Sky Harbor. Our bodies are such fragile things in some ways, but so meant to survive in others. It really is amazing.
dejana
Aug. 15th, 2012 04:13 pm (UTC)
For some reason I've been seeing your locked posts but not your public ones. I didn't know it was this serious. I'm scared for you and I hope everything works out. I'm so sorry you're going through all this. You've always been a brilliant, special person and you deserve better. ♥

I'm so sorry I didn't reply right away. I read your message, but I did that thing that I do where I think "I'll wait until I have a few minutes to write a thought-out, worthwhile response" and then it gets put off until God knows when. I had set a reminder on my phone to respond to you this evening, but a short note now is better than waiting, I think.

I would be happy to host your sites for you, and your domain name as well. Let me know what we need to do to make the transfer. If need be I could probably handle the move myself if you send me your hosting and login information.
alexielnet
Aug. 16th, 2012 12:28 am (UTC)
Oh God thank you! Like I said I am having a lot of confusion right now so I am not sure about everything. My site as it is takes up about 600 mb of space I think. Is that a lot? Would you be able to host it as it is pretty much or would I need to trim it down, because I will if that will make it easier? I'm not even clear on how to work a transfer at this point. All I know is that I don't want my sites to disappear forever until absolutely necessary, I worked so hard on them for 12 years. It seems a shame to have them go. I might need you to explain a lot of it to me because I am so confused.

I'm going in to the hospital tomorrow. In better news, I am facing financial ruin, but at least one good thing has happened and that is the operation in going to be covered by a charitable foundation so I don't have to worry about getting in at least! I'm not sure how the rest of it will work out but at least there is that.
dejana
Aug. 16th, 2012 02:01 am (UTC)
I have plenty of space so hosting it all as-is will be no problem. If it would take some of the stress off of you, I can take care of the entire transfer myself if you're willing to send me your login information. Basically the process is to download your sites via FTP, upload them to my host, and transfer your domain to my account. I'd need:

1) The name of your hosting company
2) Your user ID and password for your host
3) The name of your domain registrar
4) Your user ID and password for your registrar

You can email the info to me at dejanatalis@aol.com.

I'm glad to hear your operation is going to be paid for.
alexielnet
Aug. 25th, 2012 04:12 pm (UTC)
I'm sorry it has taken me so long to get back to you. I've been having major computer issues and I've forgotten all my passwords and can't reset them because they're all connected. That means I might lose my Face Book and my Live Journal. Also my lab top is about to die. I feel like I am in a whirlwind of problems. I know you have your own stuff to deal with so I hope this doesn't up set you. I wrote down your e-mail and I'll try to save it some where so I can contact you because I hope to stay friends even after all of this.
( 14 comments — Leave a comment )

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